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Vulvar Pain

Pain in the vulva is a common and often distressing symptom for people with vulvar lichen sclerosus (VLS), particularly in moderate to severe cases. This pain can result from small cracks in the skin (fissures), open sores (ulcerations), or inflammation caused by the condition itself (Günthert et al., 2012).

The severity of pain varies widely—some may experience a mild ache, while others endure intense discomfort that affects their ability to perform everyday activities like walking, sitting, or using the restroom. For many, this pain significantly disrupts their quality of life, making it difficult to engage in social activities or maintain normal routines.

Impacts of Pain

Seeking Help and Reclaiming Comfort

Managing VLS-related pain is possible with the right care and support. Treatments like clobetasol ointment can significantly reduce inflammation and prevent further damage.

Pelvic floor therapy, mental health counseling, and soothing topical ointments can provide additional relief and help patients regain their confidence and quality of life (Gutiérrez Ontalvilla, 2022).

Living with chronic pain can feel overwhelming, but you are not alone. With early intervention, a dedicated care team, and evidence-based treatments, it is possible to reduce pain, protect long-term health, and improve overall well-being.

Fears and Anxiety

Pain caused by VLS can lead to a constant fear of worsening symptoms or new flare-ups. Many individuals worry about engaging in daily activities, such as exercise, sexual intimacy, or even wearing tight clothing, as these may aggravate their pain.

Over time, this fear can limit mobility, relationships, and even self-confidence, creating a cycle of avoidance that further impacts quality of life (Gutiérrez Ontalvilla, 2022).

Patients often report a sense of helplessness, fearing that their condition will worsen or that treatments won’t work. This anxiety can be exacerbated by a lack of understanding about VLS or the challenges of finding a knowledgeable healthcare provider. Providing clear, compassionate communication and reassurance during medical visits can help ease these fears.

Worsening Symptoms

Untreated or poorly managed VLS can lead to worsening pain over time. Chronic inflammation and scarring can cause the condition to progress, resulting in more severe structural changes, such as labial fusion (skin growing together), clitoral hood skin growth, or narrowing of the vaginal opening (Günthert et al., 2012).

These changes not only intensify pain but can also make treatments less effective if delayed.

Patients often describe the progression of VLS symptoms as frustrating and isolating, especially if they do not receive timely care.

This highlights the importance of early diagnosis and consistent treatment, including the use of prescribed topical clobetasol ointment and ongoing follow-ups with healthcare providers (Bradford & Fischer, 2010).

Body Image

Chronic pain is not just a physical issue—it often impacts how patients perceive their bodies. The structural and skin changes associated with VLS, such as scarring, thinning, or loss of pigmentation, can alter the appearance of the vulva, leading to feelings of embarrassment or shame.

Many patients describe a sense of "losing themselves" or feeling disconnected from their bodies due to the physical changes and persistent pain (Bradford & Fischer, 2010).

This emotional toll is particularly evident in intimate relationships. Pain during sexual activity (dyspareunia) and changes in vulvar appearance can lead to feelings of inadequacy or fear of rejection, making it difficult to maintain or build intimacy.

Counseling and support from mental health professionals can help patients navigate these challenges and rebuild confidence in their bodies.

Read about Skin and Structural Changes

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Vulvar Support